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Friday, October 15, 2010

Help me fight chronic pain...

jingle Bell logo Like many people these days I do my best to stay healthy. I have made efforts to change my lifestyle. I eat much better than I used to, I exercise, and I try to get enough sleep. For me however, these things are methods to combat a painful, debilitating syndrome, with no known cause, and no known cure. I May not look sick, but I suffer from Fibromyalgia. Each day is a challenge to live my life to it’s fullest without overreaching my physical reserves and winding up curled in bed crying in pain.

When I go on vacation, I do my best to attack Walt Disney World with gusto and vigor, yet some days my body simply doesn’t agree and I end up in an electric wheelchair (ecv). I was very Self-consciousness of being in an ecv this year because I was going to meet so many people from the Disney community. I wasn’t sure if I would be treated differently, looked down upon, judged. Happily what I was met with was understanding and consideration. The truth is that conquering Walt Disney World can take an incredible physical toll on even the healthiest of people. For those of us with disabilities, it can be akin to climbing a mountain.

I have found that exercising is a huge benefit in my pain management strategy, and because of that I get out and walk as much as possible When I can, I even participate in the occasional 5K race. It’s reaffirming, and crossing a finish line validates that even though I live my life with disability, if I manage my condition carefully I can live an exciting, full life.

Fibromyalgia is a confusing and often misunderstood condition. The overwhelming characteristic of fibromyalgia is long-standing, body-wide soft-tissue pain, that can be described as deep-aching, radiating, shooting and burning. My symptoms include memory and cognitive difficulties, sleep disturbance, and tingling as well the wide spread pain. The severity of the pain can range from mild to severe, with time periods where the condition flares up and symptoms worsen significantly.

Though Fibromyalgia is not a form of Arthritis, it is often considered a sister of rheumatoid arthritis and lupus. The Arthritis Foundation is a significant leader and contributor to fibromyalgia research and education. Every year The Arthritis Foundation holds a holiday 5K run/walk Jingle Bell Run/Walk for Arthritis® that I try to participate in in order to raise money to help this worthy organization. I didn’t think that I would get to do the Jingle Bell this year because I couldn’t afford the entry fee.

I’m thrilled to say that I’m being sponsored for the basic registration so that once again I’ll be participating in this fabulous event! This holiday season I will tie bells to my shoelaces and dust off my reindeer antlers as I participate in the Jingle Bell Run/Walk® for Arthritis, a 5K fun run/walk to benefit the Arthritis Foundation. And YOU can help, too! Won’t you please sponsor me in my effort to raise funds for this great organization that works so hard to find answers about Fibromyalgia. The Arthritis Foundation not only touches my life but the lives of more than 46 million Americans who live with arthritis and chronic pain syndromes.



jingle donate

Please visit my sponsor page and make a contribution
so that I can walk to be pain free.

I need your help to keep walking strong.

2009 Jingle Bell


Visit these great websites for more information on Fibromyalgia:

Arthritis Foundation
National Fibromyalgia Association
Butyoudontlooksick.com

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